The Guide #232: From documentary shock to Bafta acclaim – how the screen shaped our understanding of Tourette’s

The Guide #232: From documentary shock to Bafta acclaim – how the screen shaped our understanding of Tourette’s In this week’s newsletter: After a controversial awards moment thrust the condition into the spotlight, we look at the new biopic of John Davidson and the decades of portrayals that led to it Don’t get The Guide delivered to your inbox? Sign up here T he wildfire surrounding last week’s Bafta ceremony – where Tourette syndrome campaigner John Davidson involuntarily shouted a racial slur at actors Michael B Jordan and Delroy Lindo, and the BBC aired the moment – continues to rage. Criticisms have been levelled at, and investigations opened by, the Beeb and Bafta; hundreds of news stories and comment pieces have been devoted to the incident (if you read anything, make sure it’s this clear-eyed piece from Jason Okundaye, who was at the ceremony); and the climate on social media has been toxic, with much of the ire directed at Davidson himself. It’s an ire that is based on a complete misunderstanding of coprolalia, the form of Tourette syndrome that Davidson has, which results in the unintended and completely involuntary utterance of offensive or inappropriate remarks. There’s an unhappy irony at play here because Davidson, arguably more than any other person in Britain, has been responsible for raising awareness of TS. There’s an unfortunate symmetry, too, to the fact that the incident was shown on primetime BBC , because that was where Davidson was first brought to national attention as the subject of the landmark 1989 documentary John’s Not Mad. Directed by film-maker Valerie Kaye, and aired as part of the popular science series QED, the half-hour film – available on DVD or to rent or stream on Prime Video – shadows a 15-year-old Davidson around his home town of Galashiels, in the Scottish Borders, as he struggles both with his condition and the intolerance of those around him (his own grandmother claimed that he was possessed by the devil). It’s hard to ex...