NORD CEO Pamela Gavin

New Medicaid work rules could cause patients to lose coverage, rare disease advocates warn

The government wants to add work requirements to Medicaid, the health program for low‑income Americans. Rare disease advocates warn that these rules could cause many patients to lose their Medicaid coverage. They say people with serious illnesses often cannot work, so they would lose health care. NORD CEO Pamela Gavin advises families to learn about the changes and plan ahead.