After Receiving a Custom Experimental Medicine, a Teen With a Rare Genetic Disorder Walked on His Own for the First Time
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For most of his life, teenager Connor Dalby could not walk by himself. As a baby, he experienced 50 to 100 seizures per day, his mother, Kelly Del Real, tells KPBS’ Heidi de Marco.
Reported by 1 outlet — Smithsonian. See all sources ↓
For most of his life, teenager Connor Dalby could not walk by himself. As a baby, he experienced 50 to 100 seizures per day, his mother, Kelly Del Real, tells KPBS’ Heidi de Marco. Anti-seizure drugs offered little relief. He was not expected to live past his fourth birthday due to his extremely rare genetic mutation, reported Endpoints News’ Jared Whitlock in 2024.
Read the full report at Smithsonian ↗
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- What's the story?
- For most of his life, teenager Connor Dalby could not walk by himself. As a baby, he experienced 50 to 100 seizures per day, his mother, Kelly Del Real, tells KPBS’ Heidi de Marco.
- How widely is it covered?
- 1 outlet, average source rating 7.0/10.
- When was it last updated?
- 3m ago.
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After Receiving a Custom Experimental Medicine, a Teen With a Rare Genetic Disorder Walked on His Own for the First Time
Sources1TypeCoverageSmithsonian