How One Woman With a Very Rare Disease Secured a Clinical Trial
First publishedAug 17, 09:01 UTC
Last updatedAug 17, 11:59 UTC · 5m ago
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Answer
Neena Nizar is one of only 30 people worldwide living with Jansen’s disease, a rare disorder that deforms bones. 1 in a study at the N.I.H.
Reported by 1 outlet — NYT Science. See all sources ↓
Neena Nizar is one of only 30 people worldwide living with Jansen’s disease, a rare disorder that deforms bones. 1 in a study at the N.I.H. of a drug that might help.
Read the full report at NYT Science ↗
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In brief
- What's the story?
- Neena Nizar is one of only 30 people worldwide living with Jansen’s disease, a rare disorder that deforms bones. 1 in a study at the N.I.H.
- How widely is it covered?
- 1 outlet, average source rating 9.0/10.
- When was it last updated?
- 5m ago.
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How One Woman With a Very Rare Disease Secured a Clinical Trial
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